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RESOURCES

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New Parents

A personal contact is made to extend support to parents with newborn or adopted children who have been given the diagnosis of Down syndrome. A TBODS bag with books, DVD, and other informative materials are given at no cost to the new parents. If you know a family or you yourself have received a diagnosis we’d love to hear from you.

Contact us below!

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Reach Out!

Are you a new parent or recently received a prenatal diagnosis for Down Syndrome? Or maybe you’re a friend or family member of someone who is? We’d love to connect with you and provide whatever service or information you need. Or, even if you just want someone to talk to and ask questions. We’re here to help.

Fill out the contact form and we’ll be in touch with you shortly.

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What is Down Syndrome?

 

Down syndrome, named after John Langdon Down the English physician who discovered the Syndrome, is a genetic condition in which an individual has a partial or complete extra copy of the 21st chromosome.

All people with Down syndrome experience cognitive delays.  The effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.  Additionally, some people with Down syndrome have low muscle tone and other physical characteristics associated with Down syndrome that will likely affect how soon a child with Down syndrome will be able to sit up, walk, and speak.  Although a child with Down syndrome will learn how to do these and many other activities, it may be somewhat later than his or her peers without Down syndrome.

*Definition of Down syndrome taken from the National Down Syndrome Society (www.ndss.org).


National Resources

Down Syndrome Diagnosis Network

www.dsdiagnosisnetwork.org

The National Down Syndrome Society 
 www.ndss.org

LOCAL RESOURCES

Family Resource Network

www.frcn.org

Valley Mountain Regional Center

www.vmrc.net

Special Needs in My City

https://specialneedsinmycity.org/

Recommended MEDIA

The Lucky Few Podcast

www.theluckyfewpodcast.com

In Search of the Lucky Few

YouTube Channel